tested at 6 and diagnosed till 17

I was tested when I was 6 and my parents were told that I was high on the autistic scale and they did not believe them. they said their is no way that he has autism he is nothing like a person with autism. he is talkative and intelligent and in no way acts like a autistic. it took 11 more years to get the DX of Aspergers. they believe it now and can see the quirks that I had as a kid was the autism. well after all of that i did have autism after all and I should have been getting all the supports for it since it was discovered when I was 6. I have yet to have any therapies for it.

curing autism

I am an aspie and I do not want to be cured from the aspieness it is who i am and i would not want to change it. their are parts of me that i would like to change but they are not part of the aspieness of me. I am offended by jennifer's comment about curing it. it is not the aspergers that needs cured. I am legally blind and i would like to change that. I have no use of my left arm and i would like to change that. things like that I would like to change but not the aspergers. I do not like the puzzle piece either as the symbol of autism. I am not a piece that needs to be fixed. I am a person that just wants to live my life without people judging me. I hope this makes sense to everyone.

My school life

It would be dull to be normal their would be no fun and no adventure to go on. Kids are very mean with the name calling, i was called many nicknames that were hurtful and nasty. In preschool i spent the whole time hiding underneath tables and playing by my self. I don't know what the other kids thought of me but it was probably not good. I have no use of my left hand so it is a good thing that I am right handed but even at that I can barley use my right hand. I never liked recess and used to just play by my self in a corner. i was called nasty names all through school and into adult hood but now it is a blessing. being a nerd or geek gets you into better careers and into a better life for yourself. I was very shy and the teachers and other kids did not even notice me in school. I never raised my hand or helped out in class. I was the invisible kid just plugging along doing the work that was needed. I had a big stuttering problem in fourth grade that did not help much. I was teased badly for that. I was no good at sports because I have no depth perception and can not see any motion and can not kick or run properly to save my life. I was called germy instead of my name for years. I am irish and a bit of Scottish and dutch. in sixth grade I had a bully that used to trip me up many times a day and beat me up. I even got a restraining order against him but it did no good. I used to get chased by a group of kids and if they caught up to me they would beat me up badly. After 6th grade my parents moved and put me in a new school hoping it would be better but it ended up to be much much worse for me. every kid was beating me up and taking advantage of me and calling me everything in the book. I skipped almost 2 month of seventh grade because it got so bad that i was too scared to go to school so I stayed home and called in sick pretending to be my dad because my voice had changed by then. I had to take a ferry and two busses to get to school in grade 8 through 12 and got beat up and picked on on the ferry and the bus rides. had two bus rides going their and two coming home again. some times the other kids would not even let me sit down on the ferry and on the busses. and the bus drives did not care that i had to stand while they were in motion. Grade 6 through 10 were the hardest years of my life next to what happened to me in grade 11. I had only one friend in grade 7 through 12 and till today. I had a different friend in 7th and 8th and my BFF that i met in grade 9. I was tormented real badly in PE so in grade 9 I got two doctors notes excusing me from having to do PE and so I got out of it. I tried to fake sickness from grade 6 on word because of how bad it was for me to go to school. I was cared for my life and was upset all the time. the one time I went to a youth centre to hang out i got into a big fight and was beat to a pulp. I never went back to any youth centres.

My book is available in print from Amazon

My book is available to order in print. Get your copy now from amazon

http://www.amazon.com/dp/148027948X/ref=cm_sw_r_fa_dp_xxcQqb1AH19AA

My book is available to order in print. Get your copy now.

My book is available to order in print. Get your copy now.

https://www.createspace.com/4053993?ref=1147694&utm_id=6026

My book is published on the amazon kindle

Hi I have published my book to the amazon kindle and it will be coming to paper back print shortly.
You can get the kindle version here

http://www.amazon.com/Living-with-Aspergers-Syndrome-ebook/dp/B00A42ADG0/

Spreading awareness about ASD

I really want to spread awareness I do not think their is enough info from people with Aspergers about what it is really like to live with it. People would be way more understanding of people affected by it if they new what we have to go through.

A little bit about me

Hi my name is Jeremy Tolmie I am 31 years old and have Aspergers Syndrome OCD, SPD, PTSD, ADHD, Dispraxia, Depression, Social phobia, Panic disorder, anxiety disorder, agoraphobia and psychotic episodes with psychosis. 

I am a certified computer technician having graduated from Academy of Learning with my Computer Service Technician Diploma with honers. 

I work for Literacy Central Vancouver Island as a computer technician. I refurbish donated computers that go to families with kids on welfare. 

I love computers, hockey, star trek, video games, alternative music, crime tv shows, most movies except romantic comedies, lord of the rings, harry potter, most fantasy and sifi books movies and games, Netflix, apple products, reading, writing and blogging, Facebook, cartoons, comics, and so much more.

I run two blogs and have published a book on what it has been like for me growing up with Aspergers Syndrome and not knowing it till I was 17.

my blogs are at

http://www.facebook.com/jeremytolmieauthorpage

http://livingwithautismbyjeremytolmie.blogspot.ca/

I also run a group at

https://www.facebook.com/groups/Authorswithautism/

My book can be purchased at 

http://www.amazon.com/Living-Aspergers-Syndrome-Jeremy-Tolmie/dp/148027948X/ref=sr_1_1?ie=UTF8&qid=1376362754&sr=8-1&keywords=jeremy+tolmie

I am always up to making new friends on FB and getting new followers for my blogs. I am also always up to talking to people about what it has been like for me. Or about anything that they want to talk about. I am way more social on FB then I am in person that is why I love FB and am glad that it is around so that I can feel good about being social and giving me the time I need to make conversations.

That is a bit about me and I hope to chat to you all more in the future.

Handling different situations and ASD

You do learn how to better handle different situations the more times you have to go through them. I am multiple times better now then I used to be for having outbursts and walking away. It just takes time to learn the skills necessary to be able to handle them.

List of Common Symptoms of FX

every one with a x is a match to me and the ones that don't could be but I don;t know. except for the female ones.

List of Common Symptoms

Here is a list of the common symptoms that may be experienced by those affected by Fragile X Syndrome. Intellectual disability of one degree or other is common to all affected individuals but other symptoms vary from person to person. Not everyone with Fragil

e X has the same signs and symptom or to the same degree. Affected females tend to suffer less from the symptoms present in males but may have their own particular issues.

Development Delays
Crawling x
Speech x
Sitting x
Walking x
Toilet Training x

Possible Physical Features
Chest with a “hollow” look x
A squint or “turn” in the eye x
Eyelids that tend to puffiness x
Elongated face – long forehead and jaw (more evident after puberty)
Flat feet (pes planus) x
High arched palate x
Hyper-extensible joints x
Large testicles (evident after puberty) x
Low muscle tone x
Prominent ears x
Single Palmar Crease – WIkipedia description x

Possible Behavioral Symptoms
Anxiety and shyness x
Attention deficit disorders and hyperactivity
Autism and autistic-like behavior * x
Chewing of Clothes
Concentration Difficulties x
Eye Contact difficulties x
Fixed interests in certain subjects x
Dislike of change in routine x
Hand biting and hand-flapping x
Hyperactivity and short attention span
Inability to control emotions x
Impulsivity x
Perseveration – repetition of the same actions or words x
Poor eye contact x
Disturbed sleep x
Tantrums or other emotional outbursts. x
* Autistic symptoms and autistic-like behaviors include many of the other symptoms listed above. x

Possible Medical Issues
Eyes – squint (strabismus ) x, long sightedness x and visual perceptual problems. x
Epilepsy (about one in four)
Ear Infections x
Hernia
Joints subject to dislocation x
Mitral Valve Prolapse – Wikipedia description
Hyper sensitivity of the senses (sound, smell, touch) x for all

Possible Symptoms common to affected females
Shyness and Moodiness
Lack of social skills
Avoidance of social contact
Depression and anxiety.
Refusing to talk in certain situations (selective mutism).

Female Carriers
Unaffected by the symptoms above but may suffer from
Premature Menopause

Male Carriers
Older male carriers may suffer from
FXTAS – Fragile X-associated Tremor/Ataxia Syndrome

Me Meds and ASD

When I was 16 my parents made me go to a psychiatrist. I did not want to go but they made me so I went. The doc sent less than a hour with me and said I had OCD and put me on 20mg of Paxil and 1mg of Anafenel to combat the symptoms. 
I was also on a med for my acne which was a high dose of vitamin A.
With in a couple of weeks I was felling way better and all of my anxiety had gone away. But it

 did not last long because within another couple of weeks all hell broke louse. I started acting out and having massive meltdowns for no apparent reason. So they upped the meds to 30mg of Paxil and 1.25mg of anafenel.
In a couple more weeks it got even worse and I started hitting and bitting and flipping out. The docs said mental illness can appear around this age and so did nothing about it. One day I skipped school took a sledge hammer to the side door and trashed the house thoroly and took every thing of value out of the hose in garbage bags into the empty lot next door.
When I was done I called 911 to report that the house had been broken into. So the police came by and took statements. My parents got home just minutes after the police had showed up. They were devastated at what had been done to their house.
A couple of days latter I went to look at the bags of stuff that I had took because it had snowed the day before.
My mom found my tracks and found the stash of stuff and was really exited and got me and my dad to lug the bags back to the house and check that everything was in them that was stollen and sure enough all was accounted for. They called the cops and the cops came and took fingerprints off of the bags and made us come down to the station to get our finger prints taken.
So that night i freaked out because I knew my prints would be all over those bags and got caught by my parents when I tried to steal the computer back again.
They informed the police that I had done it and not to go to all of the effort.
The police wanted me to get some help but they never did.

This is part two of me at 16.
the next day I was put in the psych ward at the hospital because I had such terrible panic attacks because I had broken the only computer in the house and I could not live without a computer to play with.
I stayed in the psych ward for almost a month till they finally said I had to leave they needed my bed.
They did lots of testing on me but all they could come up wit

h was that I was social phobic with other anxiety disorders and they did not know why I was behaving the way that I was.
My dad visited me every day in the ward and we would talk and go for walks and do stuff together. My mom never came to se me not even once. My dad said she could not bare to see me like that it hurt too much and all she could do was cry.
I went home and went back to school but I did not last more than two weeks before it got so bad that I just dropped out of school.
I stayed home by myself for four months before my parents were able to get me into a special hospital for kids with disabilities.
I had to stay their for three weeks to get a bunch of tests done on me to find out what was going on.
I was supposed to have weekend visits with my parents where i got to go home and then come back on monday. But they decided I was not ready when the first weekend visit was supposed to happen. So they said I could not go home for the weekend and would only be able to go out for a few hours each day.
My dad told them that I was going to make a run for it and their was nothing that they could do to stop me. they said not to worry this is a locked ward and their is no way that he can get out of here.
Well every day they have a shift change and we are sent to our rooms that are not locked and made to wait their till they come for us.
That day I did not wait I snuck out of my room their was no one around and so I wandered out the door into the hall and told the security guard that I had a pass to go for a walk and he let me outside and I made a run for the road out of their. I ran for two blocks before I had to slow down to a walk and kept on going heading for the highway to go home.

I waked for four hours before someone stopped and offered me a ride. He thought I was a friend of his but he felt sorry for me so he gave me a ride.
the hospital was 60 miles away from the ferry terminal that I had to take to get home. I had waled 12 miles by that point and was dead tired and had planed to sleep in the ditch till morning and continue on.
I gave him all the money I had which was $6 to pay for the gas he used to get me to the ferry. I made the last ferry home and one of the ferry workers recognized me and new my parents were in Victoria spending the weekend with me their because my dad had talked to him on his way over to town.
So he gave me a ride home and got in touch with my dad about me being at home.
I called the hospital to tell them where I was and to tell my parents that that is where I was.

This is part 3.
I spent the night with no one at home me all by myself and my parents came home the next day. they got home in the early afternoon so I had the whole house to myself. I liked it that way and I did not mind it one bit and got into no trouble at all.
We spent the weekend talking and trying to figure things out and went home monday morning back to the hospital to finish with the tes

ting.
They clanged my med to 10mg of Paxil and 1mg of resparadone. It did not help me much but they had to try something. With in a day of the change I threatened to burn the place to the ground and that I saw flames erupting from every ware.
All they could say is that I have PDD-NOS but could not tell us anything useful.
We got home and the psychiatrist changed the meds agin to 50mg of Zoloft and 1.25mg of resparadone.
Things went from bad to worse within a couple of weeks I had set the house on fire and was a ranting lunatic.
The cops charged me with arson and sent me for a psych eval at a youth detention facility.
Their they took me off all my meds because they could not get them to me.
I spent a month in their and they came back that I was a hyproconriac and their was nothing wrong with me at all.
The courts put me on house arrest till they figured out what to do with me.
My parents got a good lawyer to fight the case and it took 8 months to get it all figured out.
Eventually the case was dropped with it being labelled mental incopitacy to stand trail.

This is part 4.
So After the prison I went home and my parents did not know what to do with me because the hose was toast and they were living in a tent while it was being repaired.
So they got me back into that hospital that I was talking about for more tests.
I went their for 5 weeks because I was so much better off of all the meds that they did not know what to say to my parents. they wanted

 to say that I needed to be put in a nut house and never let out. But I was so much better that that was no longer a option.
After all the tests they came back with Aspergers Syndrome as the DX for me.
I got to go home with my parents and they still did not know what to do with me so they put me into a full time youth care home.
Their I lived and was only allowed to see my parents every second week.
i hated it their and it was not a good experience for me.
I lived their for over a year till finally I had to leave because I had gotten too old for them. I had turned 19 and was out of the youth system and into the adult one.
The insurance company did not want to pay the claim on the fire damage to the house. But eventually once the court dropped the charges they decided they had to pay up and so they paid my parents $90000 for the repairs that needed to be done on the house.
I went into a day programme for persons with disabilities for the next 8 months and really enjoyed it as I got to work on a ranch taking care of horses. I got to ride the horses too which I liked about it also.
After that I got into a vocational program at the local collage that was a two year course and I did really well in it.
After that I went and got my Computer Service Technician Diploma and have never looked back since.

disabled people near me and not saying stuff unless it is nice

There are not that many disabled people That I get to see every day. and the average tantrum I see is from a pre-schooler not getting what he wants from his parents. I am a very independent person so I see a lot more melt downs than my parents foo. The ones they do see I usually never ask them whats wrong with that kid because I have been there and I kinda know what is wrong. plus I have always be

en told if you have nothing good to say than don;t say anything at all. I got that a lot because I would say what was on my mind and it used to never be good. My parents would never tell me more than if I asked something like that they would say the same thing "if you have nothing good to say then don;t say anything at all".

Anti-Depresents and ASD

I was never medicated for ADHD. I was for the OCD symptoms and it was a nightmare. For me anti depresents caused me to get many times worse.

Canada Disability Benefits and ASD

Up here in canada we have what is called the disability tax credit which gives you up to $35000 in tax credits. my parents have been claiming it on theirs since they found out. Plus once you turn 19 as a disabled person you get $900 a month in support, a year city bus pass, and 50% off ferry fares. If the disabled person does not make enough to use the tax credits it can be used on the parents income taxes. You get all medication paid for, all hospital visits, doc appointments, dentists, and glasses paid for. They pay you extra for your utilities bills also. Plus you can make $800 a month without losing any benefits.

My Diagnoses

the docs first DX was OCD at 16 a year latter they said PDD-NOS then 6 months latter said ASD and I just found out about the FX. at 30.